Children's Hospital Visit

Yesterday we took Jordyn to Children's Hospital in Oakland to have an EEG and to meet with a Neurologist. We had the EEG at 10am and then had some lunch and went to our 1pm appointment with Dr. Birmbaun. He review the EEG results and said they looked fine. We told him about the episodes where she wakes up screaming in pain and then goes on to vomit and the it results in her being tilted to one side or the other. He checked her out and said that developmentally she seems to be right on target which was good but she still has a little head lag when pulled up by her arms. He did notice the nystagmus where her eyes will twitch but that doesn't happen all the time. After going over everything he said that he hasn't seen anything like this before. He now wants to do an MRI and some more blood testing to see if that shows anything. In order for her to have an MRI they have to put her to sleep so that they can get good pictures. We now have to wait to get approval from the insurance to do the testing and then we will go from there. He wants to see her back in 3 months but will call us once he gets the results from any of the tests. I took the picture below during the EEG, they placed 22 electrodes on her head and then wrapped her all up. She did really well and they were able to easily get the test done.
I have to say that the people at Children's are great. The whole experience was a little tough for me knowing that there are enough sick children to fill that hospital. We got to meet some great people and their children. As a mom I can't imagine what some of these parents are going through with their sick children. It really opens your eyes and makes you grateful for what you have. I am so lucky to have such a wonderful little girl and I love her more than words can explain. I hope that we are able to go through all this and get some answers in order to make everything OK. I'll keep the blog updated as things happen.