Health Update

Wow what a week it has been. Last Wednesday Jordyn had another one of her episodes and my mom took her to the ER in San Ramon. After being there for 4 hours they sent us home and did nothing. On Friday Jordyn had another episode and it was a bad one. It was the first time I actually freaked out. I was on the phone with Children's Hospital and they told us to bring her in. We got there and they admitted us so they could run some tests. She had a CT scan, another EEG and they started running some blood work. They put us in a ward with some really sick kids and it was a long night that consisted of no sleep. We spoke with the head of Neurology in while we were in the ER and she talked to us about some of the things they are looking into as far as a diagnoses. It is going to take some time to figure it out but atleast we are heading in the right direction. The next day the Neurologist on call told us they wanted to keep us another night but we weren't happy being there. We didn't want her to get sick from one of the other kids. The night before the Neurologist had said they would be letting us go because there is nothing else they can do right now. The other kids were so sick and it wasn't fair to keep her there and risk her health. They ended up letting us go later that night. The CT scan showed there is some extra fluid at the front of her brain but that it isn't anything to worry about. We are hoping to get the approval from our insurance to get an MRI as soon as possible. It is truly very stressful for us but we are doing everything we can to be strong. When she isn't having an episode she is just the happiest kid. We will keep everyone up to date with whats going on. Here are some pictures of her at the hospital. She had a good time and didn't know what was going on.

Her feux hock after her EEG

Watching her TV in her crib
Relaxing with her IV in her hand.