No MRI Tomorrow....

I was all excited that we had the MRI scheduled for tomorrow. I started to come down with the flu yesterday and then Jordyn woke up with it this morning. Since they have to put her out for it they won't do it if she is sick. I am going to call them first thing and see how soon I can get it rescheduled for. Sometimes I wonder if anything can go my way..... The kicker is that we probably picked this bug up from being at the hospital last weekend.

MRI on Monday

We finally got Jordyn scheduled for an MRI at Children's on Monday. Right now they are scheduling out at the beginning to middle of March but they fit us in on an emergency basis. She has to fast before the procedure which is going to be interesting. I'm wondering how a 5 month old is going to feel about not getting her bottle..... She is now eating baby food and gives us some of the funniest faces when she is introduced to a new food. As you can see from the picture below she wasn't too fond of pea's. So far her favorite is bananas.....
I'll update the blog when we know the results of the MRI. We have a follow up appointment with the Neurologist on March 3rd.

Health Update

Wow what a week it has been. Last Wednesday Jordyn had another one of her episodes and my mom took her to the ER in San Ramon. After being there for 4 hours they sent us home and did nothing. On Friday Jordyn had another episode and it was a bad one. It was the first time I actually freaked out. I was on the phone with Children's Hospital and they told us to bring her in. We got there and they admitted us so they could run some tests. She had a CT scan, another EEG and they started running some blood work. They put us in a ward with some really sick kids and it was a long night that consisted of no sleep. We spoke with the head of Neurology in while we were in the ER and she talked to us about some of the things they are looking into as far as a diagnoses. It is going to take some time to figure it out but atleast we are heading in the right direction. The next day the Neurologist on call told us they wanted to keep us another night but we weren't happy being there. We didn't want her to get sick from one of the other kids. The night before the Neurologist had said they would be letting us go because there is nothing else they can do right now. The other kids were so sick and it wasn't fair to keep her there and risk her health. They ended up letting us go later that night. The CT scan showed there is some extra fluid at the front of her brain but that it isn't anything to worry about. We are hoping to get the approval from our insurance to get an MRI as soon as possible. It is truly very stressful for us but we are doing everything we can to be strong. When she isn't having an episode she is just the happiest kid. We will keep everyone up to date with whats going on. Here are some pictures of her at the hospital. She had a good time and didn't know what was going on.

Her feux hock after her EEG

Watching her TV in her crib
Relaxing with her IV in her hand.

Children's Hospital Visit

Yesterday we took Jordyn to Children's Hospital in Oakland to have an EEG and to meet with a Neurologist. We had the EEG at 10am and then had some lunch and went to our 1pm appointment with Dr. Birmbaun. He review the EEG results and said they looked fine. We told him about the episodes where she wakes up screaming in pain and then goes on to vomit and the it results in her being tilted to one side or the other. He checked her out and said that developmentally she seems to be right on target which was good but she still has a little head lag when pulled up by her arms. He did notice the nystagmus where her eyes will twitch but that doesn't happen all the time. After going over everything he said that he hasn't seen anything like this before. He now wants to do an MRI and some more blood testing to see if that shows anything. In order for her to have an MRI they have to put her to sleep so that they can get good pictures. We now have to wait to get approval from the insurance to do the testing and then we will go from there. He wants to see her back in 3 months but will call us once he gets the results from any of the tests. I took the picture below during the EEG, they placed 22 electrodes on her head and then wrapped her all up. She did really well and they were able to easily get the test done.
I have to say that the people at Children's are great. The whole experience was a little tough for me knowing that there are enough sick children to fill that hospital. We got to meet some great people and their children. As a mom I can't imagine what some of these parents are going through with their sick children. It really opens your eyes and makes you grateful for what you have. I am so lucky to have such a wonderful little girl and I love her more than words can explain. I hope that we are able to go through all this and get some answers in order to make everything OK. I'll keep the blog updated as things happen.

Cutest Pictures

I had to share these adorable pictures that my mom took while watchin her. She has the best time at Grandma's house everyday. I sometimes wonder if she wants to come home :-)

She is is sooooo cozy in this one

The mittens keep her from scratching her face

She decided she wanted to eat the book instead of reading it


Now she has got the right idea.

Health Update

So I haven't posted much about Jordyn's health because we have been dealing with so much and didn't really know what was going on. When I took Jordyn to her GI appointment last week we started talking about Jordyn's torticollis (twisted neck). She seemed to think that the episodes that Jordyn keeps having where she wakes up screaming in pain, vomiting and holding her neck weren't signes of normal torticollis. That along with her growing head circumference and she also feels her forehead might be sticking out it gave her reason for concern. She contacted our pediatrician and spoke with her about her findings. Later that day Justin and I went to see the pediatrician and she agreed with the GI Dr and thinks that Jordyn should see a Neurologist at Childrens Hospital of Oakland. The waiting list to get in to see a Dr over there can be months long, thankfully, her GI used to work there and called in and spoke to a Dr on our behalf. I got a call today and they have schedule us for an EEG (brain activity monitoring) and then an appointment with a Dr on Feb 3rd. I am super nervous about having to go through all this but am hoping that the end result is that everything is going to be OK. At the same time I am really glad that we are going to be getting the best care to find out if there is any issues. I will try and keep all the updates posted as we find out more. Keep your fingers crossed for my little goose. I'm sure everything will be fine but it can be a little scary at times.
Everything else seems to be going well. She has us wrapped around her little fingers. All she has to do is smile and we melt everytime. She has started putting everything in her mouth and talking all the time. She enjoys her daily bath and then our little snuggle during bottle time. Being a mom to this little girl is the most amazing thing in the world for me. She may have only been here 4.5 months but I can't remember life without her.

Finally!!!!

I keep meaning to post some recent pictures and have just been really busy. We are going through some medical stuff with Jordyn but are hoping that everything turns out OK. I'll post more when I know whats going on. We took her in for her 4 month appointment and she is now 13lbs 10oz and 24.5inches long. She is holding her head up pretty well and she laughs the cutest laugh ever. I love spending time with her and she has truly brightened my life. She loves to snuggle with me and it is a great ending to a long day. She loves her daddy so much and gives him the biggest smile when she sees him. We are so blessed to have such a wonderful baby.

Daddy did her hair after her bath.

Daddy and grandad put her new toy together wrong.
Where's Jordyn?

Loving her Grandad