Neuro Update

I took Jordyn into a follow-up appointment with Dr. Birnbaum at Children's Hopsital and it went well. Since her episodes are about 3 weeks apart and pretty regular we have decided to try a headache medicine and see if it works. We now have a reference point to gauge if the medicine is working or not. It may not work but I am going to be positive and hope that it does. Like the Dr said, it would even be great if we could make the episodes further apart. At this point I would try anything (within reason) to stop this from happening from her. This medicine doesn't have any major side effects aside from possible weight gain and drowsyness. He looked her over and said that her social and fine motor skills are right on track for her age. Her motor skills are a little behind so her gave us the number for the Regional Center of the East Bay. They provide early intervention to children under the age of 3 and get them any therapy that can help them get on track developmentally. I have placed a call to them and they are going to call me back for more information and to set up an appointment. It is so wonderful that there are places like this to help parents out. I have been in contact with other parents that have children with BPT and that has been very helpful. On one hand it is nice to know that there are other people out there that are dealing with this but unfortunalty on the other hand it is sad to know that there are other kids having to go through this. This disorder is pretty rare so there isn't a whole lot of information or study done on it. Anyway.... We are going to try this medicine and hopefully it will work so keep your fingers crossed for us. I'll let you know how it goes. We will go back to the Dr is 3 months so that he can follow her.
Thanks for all of your support, we really appreciate it.